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To those of you who hold my life in your hands: I can barely express my anger and desperation to all of you
that have basically taken my life away! I considered myself one of the lucky ones.....I have had enough Lotronex to last until
now. But in a few days, my precious supply will be gone, and along with it, the normal life I've treasured for the last year
and a half. Do you have any idea what you've done to me and my family? Let me tell you what you've taken away. No more walks
with my 3 year old son, no days at the park, no bike rides, hay rides, boat trips, nothing without a bathroom within a one
minute run. Because I had cut my dosage down so low to conserve my last few pills, I have begun to feel the effects of life
without Lotronex. The last week I had to stop on the way to work each day and rush to make it to the bathroom in time. Back
were the sweats, the rapid heartbeat, the panic attacks that I wouldn't make it, as I hadn't so many times before. After dinner,
we have had to stop 1 and even 2 times, just to make the 15 minute drive home. I realize again, that there will be no more
dinners out, no more "normal" outings with my family. It breaks my heart to know that I am condemned to this life again. My
husband, family and I are all sad, but more than that, we are ANGRY that we have all been reduced to living this existence
again. And it is ALL of us that suffer! I may feel the actual pain and humiliation of a life with IBS, but so does my family,
as they all rearrange their lives to suit this debilitating disease. I will be starting a new drug - the closest one I've
heard to help manage the pain and diarrhea associated with IBS. I will have to take an anti-depressant, Remeron, because I
cannot have access to the ONLY drug that had cured me of IBS. Isn't this a shame that I have to resort to taking any drug
out there that might help -- even if it was designed for a different disease? I do not need an anti - depressant - I am the
most positive, happy person you'll meet. But believe me, I will take ANYTHING that might allow me to lead a semi-normal life.
I have done everything I can think of over the last year to convince you that Lotronex is a necessity for so many of us with
IBS. I don't know what to say anymore... I've grown so tired of asking you to do the right thing...now, you have to live with
your conscience.
Sincerely, Diana H. Atlanta, Georgia
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Hi, My name is Michele and I usually do not say much here but, believe me I have a big mouth and I am ready
to use it. I have called and written to Glaxo and the FDA many times in these past long months. I live in New Jersey, about
15 miles from the WTC. My family and I have spent many day trips in the city and now it all seems so different. I have heard
about many people who are missing, but there are 2 people who I know personally and it is sad. I knew many who worked in the
city and are safe. I was a teacher until last year when I had my first son. I have a student who is now missing a mother,
while other kids in my district are missing a parent. My town has 3 people missing and the town i grew up in about 8 people.
It is very scary and not a happy place to be right now. I am very upset because they are having ceremonies for these people
and am i gonna let my IBS get in the way??? It is really sick that it even matters. I mean these people lost family members
and i am scared to go in case i need to use a restroom. I just can not believe what we have to go thru. My IBS just seems
meaningless, but of course I know it is so important to all of us. I just do not know what to do. I recently found out that
I am pregnant again and I cannot take any meds for it. We are very happy about the baby, but I feel horrible inside. We still
need to get Lotronex back. I cannot and will not live this way anymore. Who gives anyone the right to take our lives away?
We should be able to decide our own fate. I am sorry about this, but I just feel like there is so much more for me to do out
there, then just sit in my house watching TV. Please do not give up. I have had IBS for almost 12 years and I have allowed
my IBS to take over my life. I would not want anyone to live this life. What else can we do? I feel bad when I think of my
problem compared to what these people are going thru this week, but it is very important to me and I know all of you!!! Thanks
for the chance to vent about this, I really needed it! Michele, Hawthorn, NJ
To Whom It May Concern At GlaxoSmithKline and the FDA: I am tired of begging. I am now going to demand. From
within the perspective of what has been going on the last few days, the game you have been playing with our lives is bullshit.
It is petty and asinine. It has become perfectly apparent that we cannot protect ourselves from terrorist attacks. What makes
you think you can or even have the right to protect close to half a million people from themselves? We have a RIGHT to Lotronex
if we choose to use it. The people in the airplanes that decimated thousands of lives did not have the right to choose their
fate. They were terrorized. What makes you think that any of you is less of a terrorist if you are deliberately and knowingly
putting people in fear of leaving their homes? You leave us no choice either. I demand that you stop the nonsense. Give us
access to Lotronex so that we may freely exercise our right to go out into the world as healthy persons and do whatever we
feel as individuals we must do to help with the national and global catastrophe that has fallen upon us all. All of your talking
and discussing and pondering and posturing are truly just so much sound and fury signifying nothing. Except more pain. We
have had enough. I demand the immediate, unconditional release of Lotronex so that we can stop living our lives in terror.
The only thing standing in our way is you. Sally R. Eugene, OR
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